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Smoldering Multiple Myeloma Treatments

A MyMyelomaTeam Member asked a question 💭
Tampa, FL

Who else has " Smoldering MM"? and How are you treating it ? If you are. and how long have you been in the " Smoldering " Stage?

August 14
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A MyMyelomaTeam Member

Yah! For you. I agree. Thank you so much for sending me the great suggestions. What we eat is so important. I’m seeing a Naturalist and a dietitian at City of Hope.
The MultipleMyelomaTeam.com has great nutrition guidelines: Multiple Myeloma Diet and Nutrition Tips.

August 18 (edited)
A MyMyelomaTeam Member

Kim,
I try to keep it from progressing with my diet. No more white flour, dairy, sugar, fake sugar, fried foods. Add lots of apples, lemon & lime in water, bitter greens, kale, collard greens, endive, cabbage, cilantro, parsley, raw pumpkin seeds, broccoli, carrots, beets, celery, cucumber, arugula, hemp seed, chia seeds, dark cherries, seaweed, and Himalayan salt.
Paula🌹

August 17
A MyMyelomaTeam Member

After a streaming of tests at the City of Hope in Goodyear AZ, I was diagnosed with high-risk smoldering in April of 2024, And because it is high-risk, I qualified, and I joined a Research Trial Clinic study.
I am in Group B so I will be taking Revlimid and Dexamethasone. Group A also takes the trial drug Daratumumab.
Smoldering Myeloma patients who are not high-risk, usually do not take medicines.. but instead are monitored very closely. You can find a lot of info on Smoldering high-risk myeloma online and in MyMyeloma.com. May God Bless you in your journey.

August 16
A MyMyelomaTeam Member

I am now reading Dr. Brandy's book too! I plan to get my husband started on some of the supplements this weekend. We have to be extra careful because my husband's kidneys are shot too. Good luck to you and I hope the supplements and diet works well for you.

August 15
A MyMyelomaTeam Member

Hi Kim,
I am Smoldering, not doing treatment. Treatment is usually only offered in Clinical Trials for SMM. I’m taking Dr Brandy’s advice and eating lots of fruit and vegetables and nuts. He has M and is doing well. I’m hoping the diet and supplements will keep me from progressing.
Paula 🌹

August 15

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