Connect with others who understand.

Sign up Log in
Resources
About MyMyelomaTeam
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Would Love To Hear From Someone Who Had A Autologous Stem Cell Transplant. Thank You!

A MyMyelomaTeam Member asked a question 💭
Dothan, AL

Especially if you're experiencing loss of appetite, fatigue, etc.

July 22
•
View reactions
A MyMyelomaTeam Member

piece of cake. stayed calm nurses never left my bedside. had music on. calm

July 22
A MyMyelomaTeam Member

I had my ASCT in Feb 2019 at 75 yo. The procedure was nothing compared to the fear of doing it in the first place. Now, every person is different. I was an out-patient, went into the OP Hospital every morning to get labs drawn and fluids if needed, Back to the condo by noon, or my caregiver would drive us around or stop at the store for things that sounded good to eat that day (no appetite). I never had nausea but bad diarrhea (take adult diapers). I went home in 12 days and that's when the fatigue hits you. It took me almost 6 weeks to be able to stand for more than 20 minutes or do a full grocery store shop. Lost my stamina as well.
It's now 5 years later and I have been to 7 countries between Dec 23 and March 24. Still have poor stamina but it's my new normal. I'd do it again. Here is a helpful guide for preparing for it. https://healthtree.org/myeloma/community/asct

The Complete Patient's Guide to Transplant (ASCT) - HealthTree for Multiple Myeloma
The Complete Patient's Guide to Transplant (ASCT) - HealthTree for Multiple Myeloma
July 22
A MyMyelomaTeam Member

The transplant procedure itself is anti-climatic - at least that was my experience. The melphalan (pre-transplant chemo) is rough. That was the worst part for me. Constant diarrhea - not fun. Once that passed, I was pretty good.
Once I was home after my transplant I was a bit disappointed in how long it took to start feeling back to my old self. One of my post transplant meds, can't remember which one, made me feel pretty sick. They finally told me I could stop taking it. I had a great team, was out of the hospital in record time and never looked back!!

July 24
A MyMyelomaTeam Member

Thank you, Tricia, for sharing your experience. My husband is having a hard time with fatigue, appetite and balance. It's been almost 6 months. We're praying it will get better. Thank you again!

July 24
A MyMyelomaTeam Member

Thank you, Sally! I appreciated the information.

July 22

Related content

View All

How Safe Are Autologous Stem Cell Transplants? How Many Years Would You Be In Remission After A Stem Cell Transplant?

A MyMyelomaTeam Member asked a question 💭
Conception bay south, NL

I Am Interested In Thoughts (pro And Con) About Stem Cell Transplant. It Seems Like A Very Extreme Procedure With Little Overall Benefit.

A MyMyelomaTeam Member asked a question 💭
Kingston, ON

To Stem Cell, Or Not To Stem Cell? My Oncologist Says He Feels Con's Outweigh The Pros. 2nd Opinion UCLA Doc. Says It Is The Way To Go. ???

A MyMyelomaTeam Member asked a question 💭
Simi Valley, CA
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in