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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Can Anyone Explain My Situation

A MyMyelomaTeam Member asked a question 💭
Singapore

Hi all members
Any of your opinions can share,aft SCT l on 15 mg Rivlimid about 4 months every day Zometa every month valcade every 2 weeks but l had heavy rashes and itchiness in wards about a week, when l on 15 mg had no problem and feel very active no pain issues no fatigue
tiredness the Haemotologydoctor now changed 10 mg linalidomide to every day,zometa, valcade as usual the problem is l on 10 mg and nowfeeling very tired, weak, down, so far l have no pain problem all good . What about it… read more

July 10
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A MyMyelomaTeam Member

Hi Moh - You should stick with the dosage and medication your doctor has prescribed. If you have concerns, consider contacting your care team for assistance. I think just about all the medications you take can cause fatigue and weakness. (I always experience fatigue and weakness with the Zometa.).
When I have concerns about labs, I email my doctor through our online medical portal and ask for clarification.
Hope this helps and hope you feel better soon. Peace and blessings. 🤗

July 10
A MyMyelomaTeam Member

I agree, ask your Doctor, Moh. Whenever your medicines change, ask why & what will be the benefit for the change. ❤️

July 10
A MyMyelomaTeam Member

Moh I would listen to your Doctor. Ask him what he thinks is best for you

July 10
A MyMyelomaTeam Member

I had a nasty rash on my shoulders, upper back, and chest after taking revlimid for a few months, back in 2016. My doctor switched me to pomalyst, which I took until about January of 2022. A rash is a common reason that people are taken off of Revlimid.

July 10
A MyMyelomaTeam Member

Moh, be sure and tell your doctor about the rash and itchiness - those are often a sign of an allergy to a medication. He will need to figure out which one is causing these symptoms.

July 11

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