Diagnosed With Ultra High Risk MM From Smoldering High Risk. Not Much Info On This But It Is Increasing. Any Guide To Info Is Appreciated.
Steve:Keeping fingers crossed you are STABLE since being diagnosed that is my new favorite word. 😍 Let us know how it turns out Fingers Crossed for you Dee
Steveonmfl: The way I see it everyday I am above ground.There Is Hope😁
I have del(13q); 1q Amplification; del 1p; I have High Grade Bone Marrow Fibrosis-First it was.thought that I had Primary Myelofibrosis. I also have Aberrant CD Markers. Initially I was.Told I would get Symptomatic Myeloma within 1 year and would require Treatment ie Stem Cell Transplant. Knock On Wood. No treatment as of today. It's been 6 years since my Diagnosis. Hope My Luck Continues. Have A wonderful weekend. Dee
Stevon,
What does your FISH report say? Some people only have high IgA and others like me have added high risk cytogenetics like t(14;16) with 16q deletion, Monosomy 13, and +5.
What are yours’?
Vince when I was first diagnosed with IgA Kappa SM my Kappa Light Chains were 28mg/L and My Lambda was 8mg/L making.my K/L Ratio 3.5mg/L. Today, my Kappa is.54.2mg/L and my Lambda is 11mg/L which makes my K/L Ratio is 4.92mg/L. MY IgA is very high at 2039 my IgG is 987 and my IgM is 27. MY "M" Spike is currently 1.4 and was.1
when first diagnosed with Smoldering in 2018. I DO NOT HAVE C.R.A.B. at the moment and No Myeloma Defining event as far.as.the K/L Ratio which is below 100mg/L Even though my Blood Levels are Not the greatest, my Oncologist says I am still Stable-Currently no treatment. However, my next blood test is Aug 15th along with a.24-Hour Urine-Which I do twice a year. Sometimes I have Bence Jones.Protein and sometimes I don't. Since my.Kidney function is normal I don't worry too much about that.For Now We.shall have to see.what.the future holds. Anytime you would like to.chat
PLEASE FEEL FREE TO REACH OUT. DEE
Does Anyone Have Smoldering Myeloma?are You Doing Treatment?
Quantitative Kappa Free Light Chains At 30.55 What Does This Mean? Should I Be Worried. When I Look It Up It Says So Many Different Things.
Ultra High-risk Smoldering Multiple Myeloma Diagnosis.