Are You Frustrated With Finding Effective Treatments For Myeloma?
It's unfortunate I have an aggressive myeloma and have tried 9 different combinations of treatment over the past 8 years.
I underwent CAR T Cell therapy March 2023 and achieved remission up until now. I will be looking at a bispecific treatment soon. I just keep fighting back, in Jesus' name, until it's time to go.
If it weren't for my hope in God, I think I would've died from the sadness and struggle a long time ago.
IMF has a great book that explains your blood lab results. And with myeloma you really need to understand your blood lab results and follow them carefully. The blood lab results is like a map as to where in the heck you are on this crazy journey. Or I suppose you could forgo everything and just live one day to the next enjoying the trip. Suppose the results might be about the same.
So far I have been blessed with a great MM Specialist team at Emory and my local oncologist who have provided excellent guidance in changing my meds when necessary. I was diagnosed almost seven years ago and have experienced all the peaks and valleys of living with MM but I continue to enjoy my life.
Truer words were never posted my friend!
Somewhat frustrated - imagine how many people could be helped if the mark-up of the drugs we take was fair. Thalidomide made in the 60s cost pennies per capsule, today a 21 day regimen (21 capsules) costs many thousands of dollars. Medicare or insurance pays for it so we don't seem to mind. Something is very wrong!
What Can You Tell Me About Car-T Therapy?
How Do You Feel About People With Multiple Myeloma Smoking Marijuana?
Have Not Looked It Up Yet, Bt Has Anyone Had/heard Of ELRA( Renap?). It Is A Byte. Md Proposng Dependng On Bone Biopsy Result.