That it’s a death sentence and you have a short time to live. But it is one of the most treatable cancers and with new drugs coming on line everyday the life span has increased dramatically and I am going on my 22nd. year so I have blown that misconception out of the water. I have been very fortunate that everything went well with my MM journey.

The biggest misconception that I have encountered is when I tell people that I am in remission, they assume that I’m cured. They have no idea that there is no cure! They have no idea how stressful monthly blood tests are! They have no idea of the physical and mental toll this cancer has on patients!

I agree. See a myeloma specialist!!

I believe that the biggest miss conception is that all oncologists know how to treat the desease. You need an MM specialist, and there aren't many of them especially in rural areas. You MUST see someone who specializes in it and is not treating other cancers.

One misconception is when people tell me ,you look great for having cancer! What they see is someone who may look fine but what they don’t see is the pain in my pelvic, spine, my neuropathy, my depression ,being tired a lot and the anxiety that comes and goes with this cancer. Granted I don’t have all these symptoms all at once but this is what I deal with that they don’t see. Also many aren’t educated on multiple myeloma so they don’t understand what all we go through , and what it does to our body’s,Also I was told I had five years to live. That was in 2020 and with my bone marrow transplant I was told it would add ten to fifteen years to my life. I’m in remission and I don’t think about how long I have to live my life I just live each day the best I can and let god take care of the rest. Blessings to all