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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Was Your Daily Menu After Coming Home From SCT?

A MyMyelomaTeam Member asked a question 💭
Sofia, Bulgaria
April 19, 2024
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A MyMyelomaTeam Member

I didn't have much of an appetite. Soup was a mainstay. Fruit tasted good to me. Oatmeal/cereal. I had to force myself to eat meat and vegetables. Slowly returned to a normal diet.

April 19, 2024
A MyMyelomaTeam Member

I had no appetite for awhile - the dietitian and docs at the bone marrow clinic said just to get any kind of nutrition at first. Cream soups or Ensure/Boost. When I was able to eat a grilled cheese sandwich 🥪 it was a major win! Eventually your taste buds and appetite return - just a little hurdle to conquer. 🥰

April 19, 2024
A MyMyelomaTeam Member

Dry Frosted Flakes and Sugar Pops were my go to food. I also drank chocolate flavored Boost and lots of water. I followed the Neutropenic diet. I love black pepper and that was the one spice that I had to avoid. The taste of food definitely changed ( not for the better) and that took awhile to get back to normal. It sounds restrictive but there are a sufficient range of options.

April 19, 2024
A MyMyelomaTeam Member

I had lots and nausea and I got c diff diarrhea. It was from the high powered antibiotics I had to take more than from the transplant. I ate Honey nut Cheerios and almond milk for weeks. That's all I wanted.

April 19, 2024
A MyMyelomaTeam Member

Since we had to stick to the neutropenic diet at first it was allot of applesauce, peanut butter, rice and other digestion safe food. Diarrhea was a killer...
Now a year out I still have to watch the doneness of meats, not too rare and I'm slowly reintroducing favorites from before MM... it's been fun but it beats the alternative...
I can say though that I've cut out artificial sugars and breads... definitely eating much healthier...😁

April 19, 2024 (edited)

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