Connect with others who understand.

Sign up Log in
Resources
About MyMyelomaTeam
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My Husband's Dr Said He Doesn't Or Can't Stage MM. Has Anyone Else Been Told That?

A MyMyelomaTeam Member asked a question 💭
Eagan, MN
February 24
•
View reactions
A MyMyelomaTeam Member

My first dr said they don’t because there isn’t a cure my new dr does so I think it depends on the dr

July 21
A MyMyelomaTeam Member

They can Stage it, but many don’t.

July 21
A MyMyelomaTeam Member

I asked my MM specialist in England and he actually gave me the stage I was in.

July 21
A MyMyelomaTeam Member

My oncologist also does not use staging ; he uses labs to determine how I am getting along in the disease and what I need to be taking. He says staging was done in the past .

July 20
A MyMyelomaTeam Member

Sharing 986
Hopefully we are talking about the same thing. When I was first diagnosed with MM I asked what stage I was in and my oncologist said they don't use stages but go by your labs. I've read their are several methods used for staging. If I had the article I would reference it but I think I googled it. I think maybe oncologist say that because if they tell you you are a stage one and then you relapse, they don't want to have to explain that or may not can. I am 1 year and 3 months into MM treatment and my numbers continued to improve each treatment. I was then told I was in remission..My numbers were great and then I relapsed after 7 months with my numbers still being great which is very confusing..I learned a lesson that even if your numbers are good, you can still relapse..Go figure..Their explanation was cancer has a mind of its own..All it takes is one tiny cell to wiggle is way through and break the dam..I was devastated when they told me I relapsed . My only clue was my pain had picked up quite a bit and I knew it was not normal for me to hurt like that because that's how I hurt when I was first diagnosed..I still didn't believe i had relapsed because my numbers were good, I wasn't anemic and I wasn't tired..Ran a pet Scan and there it was..Didn't mean to be so long but hopefully this may help a bit. Let me know if you challenge the oncologist again to see if his answer mimics mine. Good luck!!

February 24

Related content

View All

"no Matching Staging Information Found For This Patient" Doesn't Every MM Patient Have A Stage They Are In?

A MyMyelomaTeam Member asked a question 💭
Hollis AK

My Oncologist Said SCT Isn't Advised At My Age (73). Does Anyone Have Experience? Please Share. Thank You.

A MyMyelomaTeam Member asked a question 💭
Yukon, OK

IgA Myeloma

A MyMyelomaTeam Member asked a question 💭
Cicero, NY
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in