So far I haven’t had any problems with my doctor or nurses. I’m in a clinical trial so I’m not sure if that had anything to do with it, but my doctor has always had a very nice bedside manner, and answered any questions that I had. Also, I tried to always take one of my children with me, my advocate, so that if I forgot something they could step in and ask for me.

Greetings from Alaska via Phoenix. You have to confront the doctors, PA , nurse practitioner or whoever when they tell you, you know it’s gonna come back or it’s not curable. You just tell him/her that you are aware of this and I don’t need to be reminded I need to know what we’re gonna do next. God bless you

Seriously, I am learning that myeloma starts in our stem cells. So all of these folks that are saying they are cancer free, are they really? I hope that my numbers continue to go down at least. I'm happy they aren't going up. I would like to get off Pomalyst. It seems to make my blood pressure go up. My Mom had a heart attack at 56. I don't want that either. So Cohofly, I guess our goal would be to stay in good control until a better treatment comes along. My doctor tells me that it is very unusual for someone with my genetics to be on the same treatments for as long as I have. So I'm grateful. But is a relapse always in our near future? I have heard of several patients that keep a low level of myeloma and still do okay. Have a great New Year Cohofly. We will get there🙏🥰

Hi Walter, are you able to access your patient portal and compare your labs? Look to see if they are in range. It would have been nice if the doctor had gone over them with you. I assume they meant your labs are in range, but I can't be sure since they didn't bother to explain😏

Seems as though they are sometimes so focused on their science they don’t have much of a bed side manner. I generally don’t see the doctor who does have a wonderful bedside manner, and I see different nas and nps who are very attentive, except for one. They told me a number of times it will come back. My two year anniversary of SCT IS feb. still in vgpr. Trying to dwell on the fact that it will come back. Hope you can do the same. She didn’t need to say that to you.