Only 1% of MGUS determination develop cancer. You are only 44 years old and our myeloma diagnosis averages around 70. In a way this is good news. You will be tested on a regular basis for any progression so keep your excellent health insurance in force. Don’t panic! Even if it morphs into something worse there are many treatments available. Yes, your life will be changed forever and you will not be 100% but you should be at an acceptable level of activity without pain or impairment.

As far as the technicals of the IgG Kappa light chain I’m still learning. That’s what I have. Unfortunately my MM was raging when I was diagnosed last year. There are knowledgeable people in our group that will help you understand. So again, don’t panic. You are catching it early. Who knows, I could have had it at 44 and never knew it!

I will find out next week after testing if I have bone lesions. You are right, it's absolutely confusing on knowing how to proceed. I saw 2 physicians. One said don't worry about it. You're fine. The other- very aggressive in his testing and getting all my numbers.

I know the is a lot confusion on how to proceed with this at a young age. Most people who get MGUS are 64+ so for them MGUS turning into MM is probably not likely. But since we got diagnosed with it in out 40's we have a higher risk of progression. It's so frustrating bc in Canada no one will even give me any info on how to proceed with this except the anual blood tests. It's a good sign that you don't have any bone lesions.

Oops. Don't have bone lesions- mgus

My doctor explained it like this- he wanted to see if I had monoclonal neoplasm cells vs not and what the quantity was. Since it's present, he wants to see if I bone bone lesions. The biopsy # were 5%. You need to be at 10% for SMM and 60%for mm. He says if I have bone lesions- mgus. If I do- mm. I saw another oncologist who didn't do a lot of the tests he did. It's so hard to know how to proceed