Hey Larry, my MRD is .0006. The cancer nor the defect have been detected 9 mths out from my tandem transplants. I'm on Xgeva shots every 3 mths with no other maintenance drugs. It's my understanding that if i relapse I'll move on to car t cell treatment but my oncologist is fairly certain my remission is deep enough and won't need it.

Hi I had a SCT in 2015! 8 years of rev, 1 year of no meds. I takemany supplements with my MM specialist and my naturopathic MD.
I never went plant based but have increased fruit and veggies.
I was on the Determination trial and can’t get into the records to see if I was MRD - or not.
I continue with Aredia-every 3 months, IVIG monthly. Hope that helps

Hi Bob
I know of people that have done well tandem. Hope that goes very well.

Look at quarterly clonoSEQ blood sample testing. It’s covered by Medicare. It can provide you a early warning months before anything in your Labs - giving you time to get ahead of it with maintenance or otherwise.

Rather than Xgeva I take 680mg Strontium Citrate late at night (2hrs away from calcium & other food). Plenty of details at my Story

Hi Larry. I had a single stem cell transplant December 20th 2017. So, going on 6 years ago. I have been on Darzalex and Pomalyst 2mg since 78 days post transplant. I don't do peripheral blood based MRD testing. Mine is negative. My bone marrow MRD is 43 myeloma cells per million. My doctor tells me that it is unheard of for someone with my genetics P53/17p deletion to be on the same treatments as long as I have. So I count my blessings. I do try to eat well. Lots of crucerfious vegetables and try to limit sugar and red meat. I take Tumeric/curcumin 1 gram daily, D3, 1000 units, biotin 2500 units, B12 5000 mcg, Vitafusions womens multi, lipo flavonoid 1000 mg, alpha Lipoic acid 600 mg, Have a great day 🦃💕💖

Had SCT in June 2020. Went into complete remission almost two years ago. Now on REVLIMID maintenance. No diet, only exercise is working around the house and yard. At times feeling a little fatigued, other than that doing great!