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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Experience With CAR-T Therapy?

A MyMyelomaTeam Member asked a question 💭
Dublin, OH

I was wondering was people's experience has been with CAR-T Therapy. It is something I need to consider at this point. How long might you have been off work? Experience with the success of this treatment? Thanks as always, Todd

July 26, 2023
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A MyMyelomaTeam Member

CAR-T cell therapy is a new treatment option for multiple myeloma. It involves:

- Collection of T cells: T cells are collected from the person with myeloma
- Genetic modification: These T cells are genetically changed in the lab to recognize and kill cancer cells.
- Infusion: The modified T cells are returned to the body Show Full Answer

CAR-T cell therapy is a new treatment option for multiple myeloma. It involves:

- Collection of T cells: T cells are collected from the person with myeloma.
- Genetic modification: These T cells are genetically changed in the lab to recognize and kill cancer cells.
- Infusion: The modified T cells are returned to the body through an IV infusion.

Side Effects:
- Common: Infections, muscle aches, diarrhea, nausea, swelling, fever, cough, headache, loss of appetite.
- Serious: Cytokine release syndrome (CRS), which can include fever, low blood pressure, difficulty breathing, and impaired organ function.

Effectiveness:
- CAR-T therapy has shown promising results, with many patients achieving remission, even when other treatments have failed.

Considerations:
- Discuss risks and benefits with your doctor.
- Available only at certified locations due to potential side effects.

For more detailed experiences, you can join MyMyelomaTeam, a social network for people with multiple myeloma.

July 20, 2024
A MyMyelomaTeam Member

Hello Todd, my docs are pushing for CAR-t for me as well, but I'm not sold on it at all at this point. I did an ASCT in August - September 2022. In my research I've read that some docs recommend chemo as part of at CAR-t, some do not. I think being off work or otherwise in the hospital will depend on that. On some websites, hospitals mention that a CAR-t can be outpatient if there's no chemo.

I know there are people here who have been through it in the past, so I hope they comment.

July 26, 2023

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