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Dexamethasone

A MyMyelomaTeam Member asked a question 💭
Phoenix, AZ

For those taking dexamethasone how much do you take and how often?

Thank you everyone for your responses. I checked with my oncologist and I am going to split my dexamethasone into two doses one on Tuesday and the other on Friday Velcade day. Appreciate learning about this option and I hope it will reduce my roller coaster weeks.

July 7, 2023 (edited)
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A MyMyelomaTeam Member

I take 20mg once per week. Dexamethazone has a cancer fighting property. I was told that it's important to take it all at once to have this effect.

July 29, 2023
A MyMyelomaTeam Member

20mg every Monday

July 20, 2023
A MyMyelomaTeam Member

I took 4mg dex 5 days a week for 14 months including 20mg on treatment day. The two days in a row I didn’t take it my face broke out in terrible hives. Just weaned myself off it 6 weeks ago. I’m still exhausted every day. Only good news is my chubby face is pretty much gone and I’ve lost about 8 lbs of the dex weight so far. Also… my Dr who is the vice chair of Oncology/ Hematology at a major hospital told me he didn’t care if I took it everyday or all in one shot as long as I got the whole amount in the week.

July 12, 2023 (edited)
A MyMyelomaTeam Member

;-)
Baking has been my recreation for a while now. I definitely can gain weight, but I try to give things away and freeze a lot.

March 11 (edited)
A MyMyelomaTeam Member

water....to help flush toxins from chemo.

March 8
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