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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Had CAR-T Cell Therapy? Transplant?

A MyMyelomaTeam Member asked a question 💭
Phoenix, AZ

I would like to know a little more of what to expect.
CRS syndrome?

June 21, 2023
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A MyMyelomaTeam Member

I'm in process of car t.. had my cells removed 4 weeks ago..I start rest of process January 26th in nyc..I need to stay in ny 35 days,that bothers me more then procedure..I'm not a city guy..I don't expect any side effects..been that way last 4 years...I do believe this could be the cure..

January 6
A MyMyelomaTeam Member

Yes, I had CAR T cell therapy on March 27, 2023 and I thank the Lord for good results.
Yes, there is fatigue, but I began to increase in energy by the 3rd month afterward.
We must be patient through the process. Rest, nourishment, hydration and walking is encouraged, possibly assisted.

My faith in God has kept me going.
I give all glory to Him.

November 14, 2023
A MyMyelomaTeam Member

Are you having it because you came out of remission?

October 25, 2023
A MyMyelomaTeam Member

I had Car T-cell in January. Had grade 2 CRS but was treated with meds and recovered quickly.

June 21, 2023

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