I’ve been in remission since October I’m awaiting bloodwork and bone marrow biopsy results as we speak. It’s been recommended I have a transplant but I’m dealing with other issues and just don’t feel I could handle it right now. Pending results I’m for meds instead of a transplant. Maybe down the road I’ll change my mind. Keep us updated. Hugs to you

Hi! They took enough for 2 transplants (if I needed another one). I had mine back in 2005. They still have the cells frozen but now they are saying they would use the second transplant is a last ditch effort. It is hard on you and I was a lot younger then! They are now going through different treatments to knock back and "control" the disease. I went into remission after the first transplant for 2 years. It came back but it came back slowly. Then they started in with whatever treatment was at the front of the pack. I usually responded well and I even got off of treatment for a couple years at a time until they decided my numbers were too high. I am back on Darzalex and Pomalyst now. They are talking about taking new stem cells and signing me up for the new immunology treatments. However the side effects can be pretty serious so I am waiting on that. I would rather limp along and wait until they have improved it.

Hey Jamie, they got enough stem cells for two transplants. So I had a transplant in Dec 2017. I still have some in the freezer. I'm still on Darzalex faspro and Pomalyst since 78 days after my transplant. My doctor told me Ventoclax would be my next treatment to try at relapse💗

Jamie,
I hope you get some answers. My cousin has SCT and relapsed. He is now taking Ninlaro.