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Does Anyone Have T(14;16) With 16q Deletion Like I Do?

A MyMyelomaTeam Member asked a question 💭
Santa Ana, CA
February 2, 2023
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A MyMyelomaTeam Member

I would get a second opinion, from another Oncologist. I did get a second opinion and got into a clinical trial for Car T Therapy. It cannot hurt to get a second opinion. You may have to repeat certain tests, or your former oncologist can release what he has for review.

February 3, 2023 (edited)
A MyMyelomaTeam Member

Greetings from Alaska I have deletion of P 17 which also affects P 53 and a gain of 6,7 and 9. . Sorry I can’t answer many of your questions but as far as nutrition goes I would encourage you to add organic bone broth to your diet too. l cook all my vegetables in bone broth and make soups with bone broth. God bless you

February 2, 2023
A MyMyelomaTeam Member

Sorry I don't know.

February 2, 2023
A MyMyelomaTeam Member

Cynthia,
That is good to know. I’m glad you are doing well and pray you will continue to enjoy life.

February 4, 2023
A MyMyelomaTeam Member

I have a 17p mutation and 16 deletion. I had a Stem cell transplant in May 2021. I am doing well on maintenance with Revlimid 10mg 21 days on 7 off.

February 4, 2023

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