We have watched many webinars and asked lots of questions. We do not understand it all by any means. We trust our healthcare team and they say all is going well.

When you say Not In Remission, have you had a clonoSEQ Test?

Do you continue to have a MSpike?

A Bone Marrow Biopsy will show what percentage remains and a clonoSEQ test will identify the amount more specifically. It may take time or there are some who always have a low count that requires ongoing maintenance to control.

It’s all about Buying Time as we wait for better treatments and someday a real cure.

Just work on having the least amount of meds that control it for the least side effects.

All the Best

I know that none of us likes to hear this , but sometimes we just have to be patient as MM is insidious and if your oncologist is pleased with your lab tests and progress that is a good thing. You can ask your healthcare team to explain your key lab indicators. If you are more comfortable with your oncology nurses then ask them to explain things too. My oncology nurses were awesome and really very caring and compassionate. Do ask for their assistance as I am sure they will be glad to get to help. They often carried me when I was down and confused. We are all going through similar feelings , confusion and roller coaster of both physical and emotional stresses so do try to keep up a positive attitude, faith, hope and the belief that things will eventually get better. Keep preservering.

It’s always a good idea

I have IgA Kappa also. We are a little harder to treat. Even after my Stem Cell Transplant, I was only labelled VGPR or very good partial response- which meant not in complete remission. It only lasted 18 months for me. I achieved remission really fast after my initial diagnosis, but this time around it is taking a lot longer. I started my new therapy in October, and I still have a ways to go to reach remission. I am on Darzalex Faspro and Kyprolis with Dex on the side. Most of our meds work better on IgG patients. Your labs are probably going in the right direction.