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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

On A Daily Basis, What Is Your Pain Level Between 1-10?

A MyMyelomaTeam Member asked a question 💭
Charlotte, NC

I ask because I’m in pain a lot. I do have back issues, such as bulging discs.

January 19, 2023
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A MyMyelomaTeam Member

Sitting it goes down standing it can force me to sit or lay down . If I would try to keep standing it would easily go to a 10 . It’s like my body is being squeezed in a carpenters vice .

January 19, 2023
A MyMyelomaTeam Member

John I am the same way but my lower back is definitely from wear and tear and being young and stupid thinking I could move mountains. I take Hydromorphone three times a day and Tylenol Muscle and Body Ache every four hours and that pretty much takes care of the pain at least it makes tolerable.

March 10, 2023
A MyMyelomaTeam Member

About 8 months ago my oncologist referred me to a pain management specialist after months of complaining about severe back pain, 5 -8 on the pain scale, sometimes nearly bringing me to my knees. The pain management doc suggested a "radio frequency ablation", inserting a number of needles between the disks in my lower back and applying electric shocks to the needles to temporarily kill the nerves and interrupting the pain signal to the brain. it took a frustrating 4 weeks for it to kick in but once it did, I was pretty much pain free for the next 6 months before the nerves grew back. I had a second ablation about 10 days ago and this time it didn't take near as long for the pain to ease. Not sure how often you can do this but for now, it's been great. Worth looking into.

January 19, 2023
A MyMyelomaTeam Member

I have back pain when I stand for a prolonged period of time, about 15 minutes or so. It will be a 5 at first and rapidly escalate to a 9 if I don't sit for a bit. I had much worse back pain before the kyphoplasty last fall. Now the Tylenol takes care of it most times. Good luck to you!

January 19, 2023
A MyMyelomaTeam Member

Oh my gosh you poor thing praying 🙏 that you can get some relief!

June 21, 2023

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