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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Is Your Doctor Treating Revlimid Rash(bad)

A MyMyelomaTeam Member asked a question 💭
Santa Barbara, CA

Is there a backup treatment if revlimid rash (which is bad) can’t be controlled. Any ideas how to best dean with revlimid rash?

August 8, 2020
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A MyMyelomaTeam Member

They lowered the dose for a couple of months. Seemed to help a little.

August 9, 2020
A MyMyelomaTeam Member

I assume you are using Claritin, or another antihistamine and a topical steriod cream. The doctor can also give you prednisone to help. Hoping it doesn't get worse. Yes, there are alternative drugs to take. 💗

August 8, 2020 (edited)
A MyMyelomaTeam Member

DR sorry your rash is so bad. My husband was on dex ninlaro and revlimid. Rash was awful and itching. They think it was related to ninlaro but may have been revlimid. They left him on revlimid only.

August 9, 2020
A MyMyelomaTeam Member

My friend could not take Revlimid because of a nasty reaction. She has been on Darzalex the whole time (Daratumabab) and has been in remission for 10 years.

February 22
A MyMyelomaTeam Member

When my rash got really bad, we stopped Revlimid for three days and took Dex on those three days- 2,2,1. (4mg ea). The Dex calmed the rash down so I could pick the Revlimid again and continue with treatment.

September 24, 2023

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