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My Cancer Is In Remission And I Have A Very Bad Case Of Neuropathy. Can I Experience Pain From Multiple Myeloma When I’m In Remission?

A MyMyelomaTeam Member asked a question 💭
Columbia, SS
September 12, 2019
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A MyMyelomaTeam Member

My husband had neuropathy in his feet so bad that he became a hermit. Didn't feel like getting out of his recliner. Learned of the BioScientific stimulator & it has made a day/nite difference. I cannot describe the difference in his health. I find it hard to keep up with his schedule & I'm 10 yrs. younger.

September 12, 2019
A MyMyelomaTeam Member

My husband is in full remission. He had neuropathy really bad after sct. He couldn’t even stand without feeling like he was standing on needles. Gabapentin didn’t work, so we switched to Lyrica 2x a day. It was still the same after a few days. I heard about soaking his feet in boiled Neem leaves, and epsom salt. I did it one night, and the next day, he could walk without much pain. I cut down his Lyrica to one pill a day. He is still walking good, in fact better. I’m not sure however, if it’s beca of the Lyrica, or the soak. When we get home from vacation, we will try stopping the Lyrica to see if it’s the soak that made his neuropathy improve.

September 12, 2019
A MyMyelomaTeam Member

Peggie, Yes, you can definitely have pain after remission. You can have bone pain from lesions that have not healed or already did damage to your bones when your Myeloma was active. You can also have pain from Neuropathy, a side affect of Chemo And Myeloma medications. The pain in your left hip and knees are probably not Neuropathy that usually affects your hands, feet and legs. It might be arthritis or bone lesion pain. You should have your doctor refer you to an orthopedic doctor for evaluation. Love, Marcia 🌸

September 17, 2019
A MyMyelomaTeam Member

I am at 18 years and I still get neuropathy in my hands,feet and the front of my thighs plus back and hip pain but I would talk too your Dr. about some pain meds. I take T3’s,muscle and body ache,muscle relaxers plus I smoke pot sometimes if that doesn’t work.

November 10, 2020
A MyMyelomaTeam Member

Try soaking your feet in epsom salt.

September 13, 2019

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