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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Was Just Diagnosed In Feb. 2019. The Dr, Is Just Doing Bloodwork Now. I Don't Know What To Expect? Very Nervous And Scary!

A MyMyelomaTeam Member asked a question 💭
Stuart, VA

What are usually the first symptoms?

August 6, 2019
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A MyMyelomaTeam Member

Denying it will not change anything and I am at 17 years and counting so quit wasting your time denying it because it is coming anyway. If you follow the Dr’s orders you will be fine but I will not deny that the treatment is not easy.

January 5, 2020
A MyMyelomaTeam Member

Take it one step at a time and listen to your dr’s they will walk you through it. I was diagnosed in 2002 so it is not a death sentence but I will tell you it is not an easy road but keep up hope.

October 26, 2019
A MyMyelomaTeam Member

Agreed. Get the best MM expert you can and s very good local oncologist. If you are near east coast I recommend Dr. Hillengass from Roswell Cancer Center in Buffalo. One of the best in the world. He is my doctor and I have a local doctor he works with who is from Lipsone Cancer Center in Rochester. I had a SCT in June and all going well so far. Connect with an expert and stay strong in Faith and you will get thru this trial. Peterdem

November 28, 2022
A MyMyelomaTeam Member

Lillian, It is unusual to have waited so long after diagnosis to do blood work.. Did your doctor do a bone marrow biopsy in Feb. to diagnose you? Were labs done then? Myeloma is so different for each of us. There are a whole barrage of symptoms. Losing weight, fractured bones, anemia, kidney disease, fatigue etc. You may not have any symptoms, especially if they caught it early. Is your Doctor a Myeloma Specialist or at least any Oncologist that sees a lot of MM patients. If not you really need to consider a second opinion. Let us know how your blood work turns out! Love, Marcia

August 6, 2019
A MyMyelomaTeam Member

Thanks to my primary who monitored my anemia, she referred me to my oncologist that diagnosed me with MGUS in 2017. MM showed up this past March. Have been treating since. Numbers look good at this point praying 🙏 they continue to improve. As mentioned by other members listen to your doctor and ask ask and keep asking all concerns you have. Keep faith
God bless 🙌.

September 27, 2023

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