Connect with others who understand.

Sign up Log in
Resources
About MyMyelomaTeam
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Maintenance Other Than Rev?

A MyMyelomaTeam Member asked a question 💭
Jacksonville, OR

I have a question - Rev did not do much for my wife so she was given Dara which lowered her numbers enough for SCT. Doctors now want her on rev maintenance which seems strange because rev did not really work for her. Any insights would be appreciated.

March 25, 2019
View reactions
A MyMyelomaTeam Member

Ok...non-medical answer: a SCT is like hitting a reset button. It causes your disease, in many cases, to be minimal as if detected very early. Rev has had great results for many in “maintaining” this minimal amount of disease and keeping it from worsening for a period of time. It is a standard protocol. If it fails to maintain, there are other drug combinations. Perhaps they want to try it, in this maintenance protocol, before pulling other aces out of their sleeves that you may not have to use for years otherwise. Having said this, these types of questions should be asked of your medical team.

March 25, 2019
A MyMyelomaTeam Member

Ask your Dr. why .Everyone is different .Rev.did not work for me either so my Dr put me on pomalidamide and it works for me.

April 7, 2019
A MyMyelomaTeam Member

There are at least 10 different types of Myeloma and more being discovered at the do more research. Some Myeloma responds better to Revlimid and others to Pomalysist and some to Daramethazone or Velcade or another drug or combinations of drugs. There is not one way of treating MM. The more the researchers get to know Myeloma they can make the treatment, patient specific. Hope this helps! Love, Marcia

April 28, 2019
A MyMyelomaTeam Member

Yes. All of these meds are prescription drugs, and the doctors need to be consulted. Every case is different. If some medications don’t seem to be working, be aggressive in telling your doctor. Carefully review current test results with past results. I have had few meds stopped only after I brought them up and talked it over with his doctor. Keep a log of when you started each med.

Thank you all for your feedback! Praying for everyone! God is the number1 healer!

March 31, 2019
A MyMyelomaTeam Member

yes. My husband took Revlemid with dex. It got him in remission before transplant. After SCT, he is now in complete remission, but suffers from neuropathy . Any suggestions on neuropathy ?

March 29, 2019

Related content

View All

Can People With Multiple Myeloma Taking Maintenance Therapy Get The Covid 19 Vaccine?

A MyMyelomaTeam Member asked a question 💭
Cincinnati, OH

Maintenance Therapy

A MyMyelomaTeam Member asked a question 💭
Phoenix, AZ

Maintenance Revlimid

A MyMyelomaTeam Member asked a question 💭
Phoenix, AZ
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in