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Has Anyone On Here Been Diagnosed With Alpha Gal?
Info About CarTcell Treatmtnt
I was diagnosed with multiple myleloma and AL ameloydosis 2 yrs ago. Had 1 one round of chemo resulting in a 2 yrs remission, and a 2nd chemo round currently (revlimid, darsilex fast pro, and valcade). Ameloyd has a has affected my heart causing heart block (upper chambers and lower chambers not communicating). I am scheduled for a pacemaker in a few days hoping for a solution to this heart issue and a better quality of life. Blessings to all of you who are dealing with these issues because… read more
I added updates to my story regarding my Car T treatment at Mayo as well as my journey through various treatments getting there if you can access for more info. The short version….I was able to have… read more
Hi All , For Those Of You Who Have Had An SCT, Can You Tell Me How Long After Induction They Usually Do The Transplant? I
I am IGG KAPPA
Thank you Donna , I do have the question on my list !
Next Drug Darazlex; Please Describe Your Experience.
Recently on Revlimid had some issues that precluded me from continuing. Light chain numbers are still high which require intervention. Oncologist recommending Darazlex combo next. Somehwhat reluctant to do so. Please advise your thoughts/experience
My regiment was dexamethasone, revlimid, kyprolis, and darzalex faspro. I obtained remission in one year from diagnosis. I've had neuropathy (especially in the feet), leg swelling and skin sensitivity… read more
Can Anyone Tell Me How Difficult The Bone Marrow Transplant Process Is. I Go To Sloan In NYC On December 1st. I Thank You In Advance.
Thank you and wishing all the best.
How Long After Your Stem Cell Transplant Did It Take To Feel Better, To Be Able To Taste Food Again ?
My SCT was 16 days ago. I am utterly exhausted and everything tastes bad. Looking for some hope to feel better.
I ate a lot of mashed potatoes! Loaded with butter, sour cream, and milk. I had my transplant in May 2024. Sweets still taste really gross..which might be a good thing!
In The Blood Test, What Shows Up To Get The Results That Indicates The Cancer Is Creeping Upward. W
I thought a rise in your m spike or a rise in the effected light chain
Yes
How do I find a stem cell transplant doctor that specializes in Multiple Myeloma?
To find a stem cell transplant doctor specializing in multiple myeloma, consider the following steps:
1. Consult Your Oncologist: Your current oncologist can provide recommendations for specialists… read more
Does Anyone Else Take Valacyclovir With Treatment To Help Prevent Shingles?
I think they are the same. I will ask my daughter
I’m On Dara Every Other Week With Velcade. My Stomach Is Tender To The Touch And I Feel Nauseous. Can I Wait Until Thursday To See My Docto?
It's important to address nausea and tenderness promptly. Here are some tips from my knowledge base:
- Nausea Management: Consider taking nausea medications as soon as you get up or with breakfast… read more
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