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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

How Does A Person Decide They No Longer Require "Maintenance Drugs" Such As Revlimid?

By A MyMyelomaTeam Member 98 answers

What Are Your Top Tips For Dealing With Myeloma In The Heat?

By A MyMyelomaTeam Member 70 answers

Merry Christmas 🎄 And Happy Holidays!

By A MyMyelomaTeam Member 63 answers

Which Myeloma Symptom Surprised You The Most?

By A MyMyelomaTeam Member 150 answers
4724 questions

How Long Can You Live With Multiple Myeloma

A MyMyelomaTeam Member asked a question 💭
Worthington, WV
A MyMyelomaTeam Member

@A MyMyelomaTeam Member
My mom had Stage 4 ovarian cancer for years. When she relapsed the third time, she said no more chemo. She lived another 4 1/2 years and had better quality of life than she… read more

October 31 (edited)

Having Sharp Pains In Both Shoulders At Times. What's Your Recommendation?

A MyMyelomaTeam Member asked a question 💭
West Monroe, LA
A MyMyelomaTeam Member

Talk with your doctor. My arms is where MM was found in the bones.

October 15

Do These MM Cancer Cells Effect Every Area Of The Body?

A MyMyelomaTeam Member asked a question 💭
West Monroe, LA
A MyMyelomaTeam Member

Fragments can break off of the large myeloma molecule and enter the blood stream. From there they can lodge themselves in the tissues of other organs, such as the kidneys, the heart, etc. And of… read more

October 17

How Often Should You Have An Exam To Check For Bone Lesions And Bone Tumors?

A MyMyelomaTeam Member asked a question 💭
West Monroe, LA
A MyMyelomaTeam Member

Cat,
That is wonderful!🌈💫

October 15

The Standard Treatments For MM Especially Immunotherapy Treat These Lesions And Tumors?

A MyMyelomaTeam Member asked a question 💭
West Monroe, LA
A MyMyelomaTeam Member

Joseph, yes treatments for myeloma are systemic. So they treat all affected areas

October 15 (edited)

How Can Lesions Or Tumors On The Bones Be Found On All The Body?

A MyMyelomaTeam Member asked a question 💭
West Monroe, LA
A MyMyelomaTeam Member

Also drink pomegranate juice, cranberry juice and Concord grape juice without all the sugar and definitely without aspartame
Diet drinks just about always have aspartame and that’s horrible for… read more

October 19

Are Bone Lesions Caused By MM Cancerous? Are Tumors On The Bone Caused By MM Cancerous?

A MyMyelomaTeam Member asked a question 💭
West Monroe, LA
A MyMyelomaTeam Member

Sorry Roger this message was suppose to be for JoshepMillar. I hope it hasn’t caused you any stress. Like you I am in remission but (partial remission). I have the problem with my feet as well but… read more

October 24

Has Anyone Had T Cell Therapy? What Was Your Experience

A MyMyelomaTeam Member asked a question 💭
Ohatchee, AL
A MyMyelomaTeam Member

CAR-T cell therapy is a relatively new treatment for multiple myeloma. It involves collecting T cells from a person with myeloma, genetically modifying them in a lab, and then returning them to the… read more

October 14

MM Has Destroyed My Kidneys And I Am On Dialysis 3 Days A Week. I Am Considering Peritoneal Dialysis At Home. Has Anyone Gone This Route?

A MyMyelomaTeam Member asked a question 💭
Norristown, PA

I was diagnosed in March, 2024. Not in remission yet. Treatment Velcade, darzolex and cytoxan.

A MyMyelomaTeam Member

Considering peritoneal dialysis at home can be a viable option for managing kidney failure due to multiple myeloma. Here are some key points about peritoneal dialysis:

Types of Peritoneal Dialysis… read more

October 14

My Doctor Said I Have It And I Go Get Lab Work Every 2or3months And I Get Iron Infusions

A MyMyelomaTeam Member asked a question 💭
Rogersville, TN
A MyMyelomaTeam Member

Does anyone else have the pain to

October 13
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