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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

How Does A Person Decide They No Longer Require "Maintenance Drugs" Such As Revlimid?

By A MyMyelomaTeam Member 98 answers

What Myeloma Symptoms Keep You Up At Night?

By A MyMyelomaTeam Member 124 answers

Could You Share Any Dietary Changes And Tips That Have Helped With Myeloma?

By A MyMyelomaTeam Member 92 answers

What’s The Word On Alcohol? I’ve Had 2 Beers In 2 Years And I’m In Tears!

By A MyMyelomaTeam Member 57 answers
4723 questions

Has Anyone Had A Flu Shot And How Did It Affect You

A MyMyelomaTeam Member asked a question 💭
Jacksonville, FL
A MyMyelomaTeam Member

I had no negative reaction. My doctor insisted that I get the shot. I am currently in remission. I had no reaction to the flu shot now or last year when I was in the height of my treatments

October 23

Cold And Bloodwork

A MyMyelomaTeam Member asked a question 💭
Baltimore, MD

I thought I saw proof posting that their FLC numbers went up if they had bloodwork during a cold/ vaccine. I’m due to have my mm bloodwork Monday and I’m finally getting over my cold. I’d there a chance my bloodwork could be off if they do it even if I’m not completely over the cold?

A MyMyelomaTeam Member

My blood draw numbers, particularly light chains do change with colds and respiratory infections . Statistically there is some variation between tests, but your oncologist should discuss any important… read more

October 18

I’ve Been Put On Pomalyst And Iv Emplociti Has Anyone Else Been On Either Of These

A MyMyelomaTeam Member asked a question 💭
Tallahassee, FL
A MyMyelomaTeam Member

Yes, they have cut the dose in half, but I still have problems. I might ask if I can try a different steroid like prednisone.

October 21

What Are Serum Free Loft Chains?

A MyMyelomaTeam Member asked a question 💭
Holland, PA
A MyMyelomaTeam Member

It seems like there might be a typo in your question. Did you mean "Serum Free Light Chains"?

Serum free light chains are proteins produced by plasma cells. In the context of multiple myeloma… read more

October 17

What Can You Do About Numbnest On Bottom Of Feet?

A MyMyelomaTeam Member asked a question 💭
Chicago, IL
A MyMyelomaTeam Member

Biofreeze helps temporarily with my feet numbness/neuropathy. Hydrocodone 7.5 MG helps some also. I haven't found anything that knocks it out completely

October 23

What Are Your Results Of Car-t?

A MyMyelomaTeam Member asked a question 💭
Houston, TX
A MyMyelomaTeam Member

My mom did CAR-T (Carvykti). The side effects were rough, particularly the temporary neurological effects. She was in patient at Moffitt for about a month. It did put her into remission for about… read more

October 18

I Have 2 Teeth That Have Broken Beneath The Gum LineI I've Never Heard Of Such A Thing. Has Anyone Else Had Experience With This??????????

A MyMyelomaTeam Member asked a question 💭
Utah
A MyMyelomaTeam Member

Yes, experiencing teeth breaking beneath the gum line can happen, especially for individuals with multiple myeloma. According to my knowledge base, people with multiple myeloma often face dental… read more

October 16

How Is It

A MyMyelomaTeam Member asked a question 💭
San Diego, CA
A MyMyelomaTeam Member

Just started 2 nd month of chemo. Not the usual energy. Minor reactions. Those have subsided. Day at a time.

November 5

Does Anyone Else Experience Frequent Muscle Spasms That Feel Like The Ones You Get When Drifting Off To Sleep?

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Yes I do

October 16

How Long Can You Live With Multiple Myeloma

A MyMyelomaTeam Member asked a question 💭
Worthington, WV
A MyMyelomaTeam Member

Fermented, Great to hear that you are still in remission 🥰

November 13
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