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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

How Does A Person Decide They No Longer Require "Maintenance Drugs" Such As Revlimid?

By A MyMyelomaTeam Member 98 answers

What’s The Word On Alcohol? I’ve Had 2 Beers In 2 Years And I’m In Tears!

By A MyMyelomaTeam Member 57 answers

How Do Beverages With Caffeine Affect Your Myeloma?

By A MyMyelomaTeam Member 131 answers

Merry Christmas 🎄 And Happy Holidays!

By A MyMyelomaTeam Member 63 answers
4722 questions

My Husband Just Started Velcade..steroids And Revlimid. Hes Having Insomnia And Restless Leg.Any Suggestions!

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

For restless legs, I take calcium 1200 mg minimum (MRM Bone Maximizer III) with extra D3 & K2. It also works for cramping. I take it everyday, but not with iron. I avoid salty food, caffeine, and… read more

October 28

In Remission. Recent Test Showed Kappa Free Light Chain At 2.06, Lambda Free Light Chain At 1.22, Ratio Of 1.70. Is This Concerning?

A MyMyelomaTeam Member asked a question 💭
Meridian, MS
A MyMyelomaTeam Member

Isn't the Ratio part of the 20-2-20 Test and the last 20. So if it is below 20 it is okay. The first 20 is from the bone marrow test and the second one is M protein I beleive. You have to look at all… read more

October 25

Why Every Time I Eat I Get Nauseous I'm Already Having A Hard Time Eating Cause Of No Appetite

A MyMyelomaTeam Member asked a question 💭
Fresno, CA
A MyMyelomaTeam Member

Maybe they are a New England variety.😊

October 27

Hi As We All Probably Wonder How And Why Did I Get MM. I Have Had Long History Of Exposure To TCE. Anyone Else?

A MyMyelomaTeam Member asked a question 💭

I am in a low risk group for MM and no history of it in my family.

A MyMyelomaTeam Member

I worked in fry cleaners for about 5 years when I was young. I also wonder if it was from the awful smells!

October 26

Anyone With 11:14 Been Treated With Venetoclax? What Was Your Experience?

A MyMyelomaTeam Member asked a question 💭
Valdez, AK

I have 11:14 and 1q gain . Very slow response to standard 4 drug treatment

A MyMyelomaTeam Member

I always feel better knowing plan B…and C!

October 26

What Are Your Thoughts On Covid Vaccinations? I Didn't Have Them Prior To Diagnosis...but My Doctor Is Pushing It Now...

A MyMyelomaTeam Member asked a question 💭
East Liverpool, OH
A MyMyelomaTeam Member

Covid vaccines not for everyone, but then you don’t know until you take it. Landed me in the hospital for 3 days😳😳😳🤷🏽‍♀️

November 4

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

A MyMyelomaTeam Member asked a question 💭
San Francisco, CA
A MyMyelomaTeam Member

Daphne, I think you are correct. Not stressing is a major component on not feeling good. I believe in moderation and for the most part that has served me well. I also take some medications that help… read more

6 hours ago

What Do Take Or Found Helps Dry Mouth.

A MyMyelomaTeam Member asked a question 💭
Glendale, AZ
A MyMyelomaTeam Member

Thank you Doris for your advice. In my case during the day it’s not bad. I am usually sipping water. I try to drink between 85 to 100 ounces of water per day. At night I wake up with a dry mouth which… read more

October 21

Immunoglobulin Test; What Number Shows Low Enough Immunity That I Would Get Ill Often ?

A MyMyelomaTeam Member asked a question 💭
Hollis AK

I keep claiming that when I go to town/around people, I feel ill by the next day or third day. My oncologist and GP kind of pass it off. Yesterday I was told I have a mental problem; imagining it.
What kind of numbers would make such frequent.....issues;or rather psychological issues?
I'm researching and not finding much except "frequent infections"

A MyMyelomaTeam Member

Also.....tis the season for viruses, it seems.

October 24

Has Anyone Had A Flu Shot And How Did It Affect You

A MyMyelomaTeam Member asked a question 💭
Jacksonville, FL
A MyMyelomaTeam Member

I had no negative reaction. My doctor insisted that I get the shot. I am currently in remission. I had no reaction to the flu shot now or last year when I was in the height of my treatments

October 23
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