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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Could You Share Any Dietary Changes And Tips That Have Helped With Myeloma?

By A MyMyelomaTeam Member 92 answers

What's On Your Holiday Wish List That Could Improve Your Life With Myeloma?

By A MyMyelomaTeam Member 69 answers

What's A Common Misconception About Myeloma?

By A MyMyelomaTeam Member 135 answers

What’s The Word On Alcohol? I’ve Had 2 Beers In 2 Years And I’m In Tears!

By A MyMyelomaTeam Member 57 answers
4720 questions

Smouldering To Active Is Definite?

A MyMyelomaTeam Member asked a question 💭
Accord, NY
A MyMyelomaTeam Member

No, the progression from smoldering multiple myeloma (SMM) to active multiple myeloma is not definite. Here are some key points:

- Risk of Progression
- First 5 Years: About 10% of people with… read more

November 9

Hello, What’s The Life Expectancy?

A MyMyelomaTeam Member asked a question 💭
New Jersey, NJ
A MyMyelomaTeam Member

Are you asking about the life expectancy for individuals with relapsed or refractory myeloma? If so, here's some information:

- Relapsed/Refractory Myeloma: Life expectancy can vary based on several… read more

November 9

My Husband Is On Revlemid Maintenance And Is Getting A Lot Of Swelling In His Legs. Is This A Common Side Effect?

A MyMyelomaTeam Member asked a question 💭
Sydney, AU
A MyMyelomaTeam Member

Yes, swelling in the extremities is a common side effect of Revlimid (lenalidomide). If your husband is experiencing significant swelling, it is important to report this to his healthcare team to… read more

November 8

My Husband Is On Revlemid Maintenance And Is Getting A Lot Of Swelling In His Legs. Is This A Common Side Effect?

A MyMyelomaTeam Member asked a question 💭
Sydney, AU
A MyMyelomaTeam Member

Thank you. He will check in with his dr this week.

November 9

Is NAC Supplement Good To Protect Kidneys If Creatinine Is Going Up? Anyone Experienced Side Effects?

A MyMyelomaTeam Member asked a question 💭
Ashland, AL
A MyMyelomaTeam Member

I would ask my doctor to make sure it's okay to take this supplement.

November 9

Where Do Most Of U Experience Neuropathy?

A MyMyelomaTeam Member asked a question 💭
South Australia australia
A MyMyelomaTeam Member

Janet
I have neuropathy in my feet, calves, hands and arms. My oncologist suggested massage with ginger oil which is available on Amazon. I ordered it but it hasn’t arrived yet. I post my results!… read more

2 days ago

Why Did Some Multiple Myeloma Treatment Should Take The Medication Every Day And Some Other Take The Medication Like 21 Days And 7 Days Off.

A MyMyelomaTeam Member asked a question 💭
Singapore

Can anyone explain to this question please 🙏 like to know the reason because l been wandering about this?And l always forgot to ask this question to my doctor? Thank you ☺️

A MyMyelomaTeam Member

In answer to "why" some medications are 21 days on and 7 days off is that in the case of Revlimid with the mentioned schedule, your body needs rest to build up other blood cells in your bone marrow. Rread more

November 12

Has Anyone Here Had The IVIG Immunotherapy? Side Effects? How Often?

A MyMyelomaTeam Member asked a question 💭
Knoxville, TN
A MyMyelomaTeam Member

Intravenous immunoglobulin (IVIG) is administered via intravenous infusion in a medical setting, commonly given once a month while antibody levels are low. Side effects during or immediately after… read more

November 6

Very Interesting Article On Vitamin D.But Which Plants Are Good. Which Treatments Do Vit D Supplements Interact With.?

A MyMyelomaTeam Member asked a question 💭
Francesville, IN
A MyMyelomaTeam Member

Yes that is correct.

November 8

My Wife Has Smoldering Myeloma And Often Struggles With Fatigue And Certain Foods Don’t Taste Good Or Normal As They Used To.

A MyMyelomaTeam Member asked a question 💭

she is 69 years old and in good health otherwise

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