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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Could You Share Any Dietary Changes And Tips That Have Helped With Myeloma?

By A MyMyelomaTeam Member 92 answers

How Does A Person Decide They No Longer Require "Maintenance Drugs" Such As Revlimid?

By A MyMyelomaTeam Member 98 answers

How Do Beverages With Caffeine Affect Your Myeloma?

By A MyMyelomaTeam Member 131 answers

AM I RELAPSING?

By A MyMyelomaTeam Member 177 answers
4717 questions

Hi, I Am Luc From Ambler PA. I've Been On Velcade Since 2016. Has Anyone Been On Velcade? How Do You Deal With Side Effects? Thanks

A MyMyelomaTeam Member asked a question 💭
Ambler, PA
A MyMyelomaTeam Member

You are lucky if neuropathy hasn’t attacked you being on Velcade.

November 10

Has Anyone Been Diagnosed With Lesions In Shin Bones?

A MyMyelomaTeam Member asked a question 💭
Spokane, WA
A MyMyelomaTeam Member

I had a knee replacement in my right knee due to bone on bone osteoarthritis 3 years ago. Now with MM I had to have that replacement removed, rods placed above and below knee after the cancer lesions… read more

November 12

Are Men Going Through MM Treatments Having Prostate Issues?

A MyMyelomaTeam Member asked a question 💭
Mazomanie, WI
A MyMyelomaTeam Member

Hi Karen,
Though in my case there. Is lot any prostrate issue but my doctor told me for regular checkup and given medicine to eat. What’s ur issue now? Rgds

November 10

Hope Everyone Is Doing Well. I Am On My 7th Treatment. Sleep And Fatigue Are My Primary Problems. God Bless Everyone!

A MyMyelomaTeam Member asked a question 💭
Friendswood, TX
A MyMyelomaTeam Member

Thank you for the help. I am trying to operate this correspondence, but am not able! Ha. Stella ❤️

November 11

Once Your In Remission Can You Stop The Daratumaban Treatment? Or Take A Break From It?

A MyMyelomaTeam Member asked a question 💭
Indianapolis, IN

Abnormal protein is .04, kappa light chains are normal and so is ratios. Kidneys and liver are suffering a little bit.

A MyMyelomaTeam Member

Hi Brandon, I was told not to stop treatment. Since you still have a low level of m protein in your blood, it would be best to get to MRD negativity on your bone marrow. Even then your doctor might… read more

November 10

I M MM Patient For Last 2 Year And Under Maintenance. My Skin Has Become Dark Specially Feet Fire Head Elbows Etc. Is This The Side Effect

A MyMyelomaTeam Member asked a question 💭
Mumbai India
A MyMyelomaTeam Member

Yes, skin darkening can be a side effect of certain treatments for multiple myeloma. According to my knowledge base, common side effects of Doxil (a treatment for myeloma) include darkening of the… read more

November 9

What Is The Total Amount Of The Commandments From Gog.

A MyMyelomaTeam Member asked a question 💭
Lake Mary, FL
A MyMyelomaTeam Member

From God?

November 11

Immunoglobulin G

A MyMyelomaTeam Member asked a question 💭
Midland, PA

My Immunoglobulin G has been below 400 for the 3 years I've been on treatment. I have not had many infections. I've read that some think that if the Immunoglobulin G is below 400 you should get an IVIG infusion. My thoughts are if I'm not getting infections why would I submit to another level of treatment. Any thoughts?

A MyMyelomaTeam Member

There are side effects to IVIG. If you are not getting sick, it’s better to be cautious. I have only gotten sick 3 times since 2020. Only by the grace of God.💕🙏🏻

November 10

I Am Being Treated For Myeloma And Got A Real Bad Infection And Ended Up For A Week In The Hospital . My Immune System Is Gone. Diet?

A MyMyelomaTeam Member asked a question 💭
Vancouver, BC

can you suggest a diet i should follow to get my immune system back?

A MyMyelomaTeam Member

Oops. I see you are being treated for MM. You might want to update your profile with which type, so you can connect with others that have the same type as you.💕

November 10

How High Does Your IGM Have To Go When You Are Having Symptoms Before Anyone Wants To Treat You?

A MyMyelomaTeam Member asked a question 💭
Punxsutawney, PA
A MyMyelomaTeam Member

That’s a good question for your doctor. There are many lab values that come into play. Know what your doctor thinks is the top limit.
Paula🌹

November 10
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