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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
3531 questions
How Does Multiple Myeloma Affect My Diabetes?
A MyMyelomaTeam Member asked a question 💭

High blood sugar
Insulin resistance

A MyMyelomaTeam Member

Some people on dexamethasone have had a rise in their sugar levels. Hopefully others will share their experiences.

posted 6 days ago
Why Does It Take So Long To Get An Appointment @ UCSF
A MyMyelomaTeam Member asked a question 💭
I Am Currently Being Treated By MD Anderson In Houston. I Will Be Moving To The Seattle Area. Seeking Information On Treatment Center.
A MyMyelomaTeam Member asked a question 💭

Currently taking pomalyst, daralux fast pro and dex.
Thank you.

A MyMyelomaTeam Member

TheMMRF.org also has a list of MM Oncologists.

posted 3 days ago
Is There Any One On Carflozim
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Sorry, have not heard of it.

posted 5 days ago
If You Are In Remission, Will The Cancer Continue To Affect Your Good Bones? Never Sure Why There Is Pain, NP Said Possibly Arthritis?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

That sounds good💕

posted 6 days ago
Patients Multiple Myeloma Handbook
A MyMyelomaTeam Member asked a question 💭

Attached is a patients handbook that I recently came across for those interested.

https://issuu.com/international-myeloma-foundat...

Patient Handbook
Patient Handbook
A MyMyelomaTeam Member

Thank you for sharing this information

posted 7 days ago
I Would Like To Hear From Anyone Who Has Had Issues With Kidney Function Along With Myeloma. I Currently Have Stage 2 Renal Failure And Wil
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Mary
Are you drinking 64 oz of pure water? I have IgA Kappa and I heard it affects the kidneys and drinking water helps and avoiding sugar. My eGFR is just starting to go down and my Creatine is… read more

posted May 9
How Do Diabetics Handle The Effects Of Dexametasone? My Husband Is Diabetic And The Dex Is Hard On His Diabetes
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Ask the pharmacist on your care team for advice🙏

posted May 8
I’d Like To Know If Anyone Has Had Post-CAR T Issues Similar To Mine.
A MyMyelomaTeam Member asked a question 💭

I had the CAR T procedure 6 months ago and it worked well for the MM. However, I’m still fatigued, have daily headaches, muscle aches/strain, and food doesn’t taste quite right. Has anyone else had these issues post CAR T? Thanks! Sue

Question Please; My GFR Blood Test Reads Low ( 55). Creatinine Is High ( 1.05 ).
A MyMyelomaTeam Member asked a question 💭

I would like to know what the '(CKD-EPI)', after the GFR means?
So my kidneys are trying to tell me something apparently and it could be many things, according to a search ( age, weight, activity etc ).
SO, should I be concerned? My blood tests from yesterday are just starting to be posted in my patient portal, so I don't know what the rest of the results are yet. I don't usually have a problem, kidney wise.

A MyMyelomaTeam Member

Donna; is one of the Ports o Call, Klawock? There is a small cruise ship that comes into that port now; brand new for Klawock.

posted 8 hours ago