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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What's A Common Misconception About Myeloma?

By A MyMyelomaTeam Member 135 answers

What’s The Word On Alcohol? I’ve Had 2 Beers In 2 Years And I’m In Tears!

By A MyMyelomaTeam Member 57 answers

AM I RELAPSING?

By A MyMyelomaTeam Member 177 answers

What Are Your Top Tips For Dealing With Myeloma In The Heat?

By A MyMyelomaTeam Member 70 answers
4727 questions

How Long Before I Will Get My Core Muscles Back After Radiation To My Back, The Compression Fix And Broken Ribs From MM.

A MyMyelomaTeam Member asked a question 💭
Nanticoke, PA

Diagnosed 6-6-24, in remission since end of August darzelex decamethaxone Valcade and Revlomid. Now darzalex shots for maintenance T cell in Nov

A MyMyelomaTeam Member

Push yourself. A little more each day. Nothing good comes easy. 🐰

September 28

Has Anyone Been Dealing With Ongoing Dizziness Since Being Diagnosed/treated?

A MyMyelomaTeam Member asked a question 💭
Cleveland, OH
A MyMyelomaTeam Member

Yes, many people with multiple myeloma experience ongoing dizziness. Here are some insights from members of MyMyelomaTeam:

- Early Symptom: For some, dizziness was among the earliest symptoms they… read more

September 28

My Husband Has Just Started 15 Day Run Of Pomalyst. His Face Is Flushed. No Temperature. No I'll Feeling. Is This Normal?

A MyMyelomaTeam Member asked a question 💭
Concord, NH
A MyMyelomaTeam Member

Thanks 💙

September 29

I Am In Remission. Everyone I Talk To Is On Maintenance. My Dr Does Not Believe In It. Anyone Else Not Doing Maintenance?

A MyMyelomaTeam Member asked a question 💭
Carlstadt, NJ
A MyMyelomaTeam Member

I am just on blood thinners as at end of treatment they kept me on tablets for infections ect.They made me ill lost weight and ended up on a DNR so stopped and improved.I think treatment is brutal.

September 30

Do You Follow A Specific Diet To Help With Myeloma?

A MyMyelomaTeam Member asked a question 💭
San Francisco, CA
A MyMyelomaTeam Member

Thanks ReneJackson. Have a great Thanksgiving.

2 days ago

Is It Safe To Keep Taking My Collagen Powder During Radiotherapy Treatment

A MyMyelomaTeam Member asked a question 💭
coeurdalene,id
A MyMyelomaTeam Member

It's crucial to consult with your doctor before continuing any supplements, including collagen powder, during radiotherapy treatment. According to my knowledge base:

- Consult Your Doctor: Always… read more

September 24

"no Matching Staging Information Found For This Patient" Doesn't Every MM Patient Have A Stage They Are In?

A MyMyelomaTeam Member asked a question 💭
Hollis AK

I think I've asked about this in the past but still don't know.

A MyMyelomaTeam Member

it"s just my opinion but maybe you shouldn't delay. MS and MM? Let them help you! Any pain you may have, like a lot of us can be helped. You are in pain now
Immune therapy may help both? Make sure… read more

October 3

RSV; Can There Be A Modified Version Of A/the Flu As A Side Effect, And 9 Days After The RSV Injection?

A MyMyelomaTeam Member asked a question 💭
Hollis AK

The last couple of days, I've felt like "something" is coming on; headache, extra fatigue, general cold/flu symptoms

Update;whatever it was is gone now. ..and thinking it is just something that I pick up every once in a while.....I don't know🤔 but I'm glad it's gone; at least for now 🤗

A MyMyelomaTeam Member

I get these flu like evey three months onces, when the season changes. Just try to keep myself away from people with sickness

September 26

Do Any Of You, Who Have Neuropathy In You Feet, Experience Swelling Of Your Feet?

A MyMyelomaTeam Member asked a question 💭
Bonney Lake, WA
A MyMyelomaTeam Member

Larry,
You mentioned that before and forgot. I’ll have to ask for that test. Do you know the code?
Paula🌹

September 28

What Have Been Your Experiences With Getting Immunizations After A Stem Cell Transplant?

A MyMyelomaTeam Member asked a question 💭
Tucson, AZ
A MyMyelomaTeam Member

My husband had a schedule with dates to get revaccinated. He had no problems with any of them.

September 20
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