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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Myeloma Symptoms Keep You Up At Night?

By A MyMyelomaTeam Member 124 answers

Hello My Beautiful MM Family, I Had A SCT, In October, I’m Feeling Great, What Are The Chances Of Relapsing After A Sct? Thank You

By A MyMyelomaTeam Member 74 answers

What's A Common Misconception About Myeloma?

By A MyMyelomaTeam Member 135 answers

Are You Frustrated With Finding Effective Treatments For Myeloma?

By A MyMyelomaTeam Member 130 answers
4724 questions

Hi All. Gotta Problem With Weight Gain. I Am Now 40 Pounds Up From When I Started To Take The Dexamethasone 10 Months Ago.

A MyMyelomaTeam Member asked a question 💭
Simi Valley, CA

They told me this is normal for dex but 40 pounds and no sense if it stopping. It seems to be exactly one paond going per week. Very consistent. My eating habits have not changed in fact I probably eat a bit less with all the side effects going on. Has anyone out there experienced this level of weight gain from steroids and did it go away when you stopped?.

A MyMyelomaTeam Member

Hey everyone, thanks for your experiences and opinions. Can't wait to see how much magically comes off and how much has to be worked off.

October 24

How Long Was Your Chemo Treatment Before Your Blood Harvesting?

A MyMyelomaTeam Member asked a question 💭
Pennsylvania Furnace, PA
A MyMyelomaTeam Member

Chemotherapy treatment before blood harvesting for a stem cell transplant in multiple myeloma patients typically involves several cycles. The initial course of chemotherapy usually lasts four to six… read more

October 12

I Have A Lot Of Issues With Nerve Pain In My Ankles And Muscle Cramping In My Feet. I’m On Maintenance With Revlamid. Any Suggestions.

A MyMyelomaTeam Member asked a question 💭
Mentor, OH
A MyMyelomaTeam Member

Check your magnesium levels. My husband takes magnesium glycinate

October 12

What Are The Progression Estimates From Smouldering Myeloma To Multiple Myeloma? Did Anyone Experience This?

A MyMyelomaTeam Member asked a question 💭
Toronto, ON, Canada

I was recently diagnosed as having smouldering myeloma, and my doctor did not recommend a treatment but a check-up in a few months.

A MyMyelomaTeam Member

Thank you

October 13

Has Anyone Been Diagnosed With MM And Have Their Light Chains Decrease Without Treatment?

A MyMyelomaTeam Member asked a question 💭

My Hemoglobin Levels Are Low As Is My Red Blood Cell Count. Has Anyone Started Treatment Because Of This?

A MyMyelomaTeam Member asked a question 💭
Oxford England

I currently have Smouldering Myeloma and apart from anemia I don't have any symptoms.
I have been told that my next blood test is going to be important to check my hemoglobin levels.
I hope you are all having a good weekend take care of yourselves.
Toni

A MyMyelomaTeam Member

Rather than supplementing with Akkermansia it’s suggested to drink pomegranate juice, cranberry juice and Concord grape juice no sugar added and no aspartame either. This will stimulate the body to… read more

October 19

Question Below About MGUS

A MyMyelomaTeam Member asked a question 💭
New York, NY

I was diagnosed in July 2024 with MGUS, my protein was .03, it is now .04 at the middle of October. My CBC and Metabolic is fine, all in range. The interpetation " Evaluation reveals a faint restricted ban (M spike) migrating in the gamma globulin region" My IgM is at 461. My IFE interpetation; there is a IgM kappa monoclonal band present. If there is anybody that can share insight on what it all means would be greatly appreciated. Jeff

A MyMyelomaTeam Member

Jeffrey I think you have IgM type of MGUS. It is less common.

October 12

Anyone Get A Sudden M Spike While In Remission. I Guess I Just Relapsed

A MyMyelomaTeam Member asked a question 💭

about 3 plus years after SCT. 2 years in remission off Revlimid. No M spike for almost 2 years Just got an M spike-- serum of .3. All other labs were good Anyone get a sudden jump like this?

A MyMyelomaTeam Member

John we have been told they look for trends not one off. Maybe it will be 0 aganmext month🙏

October 12

What Is Some Of The Strangest Advice From Your Doc?

A MyMyelomaTeam Member asked a question 💭
Pottstown, PA

My doc told me today to never drink water from a place called Barto. It’s a town near me that has fresh spring water that comes out of a metal pipe. Having contaminated water issues apparently. Hoping it’s just a bug and not Revlimid’s revenge. Not my smartest move. Or worst.

A MyMyelomaTeam Member

@AngieNixon-I was given Claritin for bone pain before I had my SCT and it worked.

October 11

Anxiety Vs, Depression, How Do I Know Which One Is Messing Up My Evening?

A MyMyelomaTeam Member asked a question 💭
Newfoundland, Canada

Sometimes, I'm just too overwhelmed to stay in bed and sleep. By the way, I'm glad you folks are there. 🦉

A MyMyelomaTeam Member

I started journaling on the trip out here to Alaska; 2012. I write things like the weather on the day, what current events are......News. Also stuff that happen around here that are not all that… read more

October 14
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