Thanks Paul. I’m taking antivirals twice a day. Maybe that’s one of the issues

I had treatment for 3 months of botizimob, thalidomide, darataramub, steroids bone strengthener steroids and antivirals then was to have SCT, but couldn't due to not eating and being to week, so I stopped the antivirals and got my appetite back,it took a long time to eat anything sweet I hope you get your taste back and are able to eat.

I suppose what worries me is that even when my treatment drops to once a month (which is indefinite) that I’m stuck with this horrible metal mouth forever. Really struggling to eat.

I had trouble with taste until my treatment ended.