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Top 10 search results for "my husband has cll and is is okay right now more more suggestions to get me in control of aphasia for my husband and me doing it fun" in Q&A. To see all results and access other features, sign up for free.

Steroid For Bone Pain?

A MyMyelomaTeam Member asked a question đź’­
Gainesville, GA

Told my hematologists about all the pain I’ve been having in random places and his suggestion was a steroid taper? Anyone else take a steroid for bone pain?

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A MyMyelomaTeam Member

I’m on maintenance of 5Mg, my pain will come in my ankle, hip or back through the end of my cycle, I will take Dexamethazone 4mg for a couple of days that seems to work for me

Looking For Any MM People In Las Vegas Nevada Where We Now Live.

A MyMyelomaTeam Member asked a question đź’­
mimiedwards123@gmail.com

My husband has Mm. Diagnoses in 10/2021.
SCT in November of 2022. One year post SCT
In remission and doing okay.

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A MyMyelomaTeam Member

To find others living with myeloma in Las Vegas, Nevada, you can use the MyMyelomaTeam platform. Here’s how:

1. Sign Up: Create an account on MyMyelomaTeam
2. Activity Page: Post updates, images,… read more

How Long Can You Live With Multiple Myeloma

A MyMyelomaTeam Member asked a question đź’­
Worthington, WV
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A MyMyelomaTeam Member

@A MyMyelomaTeam Member
My mom had Stage 4 ovarian cancer for years. When she relapsed the third time, she said no more chemo. She lived another 4 1/2 years and had better quality of life than she… read more

Does Anyone Take Dexamethasone And Revlimid As Maintence?

A MyMyelomaTeam Member asked a question đź’­
Springfield, PA

I’m really struggling with taking 20 mg of Dexamethasone weekly. It’s 50 degrees here and I’m sweating like I’m in the Caribbean…. Can anyone explain why we need to take all the dex in one day? I wish we could take 1 a day for 5 days…. Thanks in advance for any suggestions…. I have no idea if this will be my maintenance therapy for the rest of my life but it’s not a great maintenance plan for me…

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A MyMyelomaTeam Member

I'm close to completing induction therapy with Dara/Velcade/Revlimid/dex (began Dec. 1, 2023), and I'm now only taking 4 mg dex on treatment day. With the approval from my oncologist, I reduced down… read more

What Percentage Of Patients Get Side Effects From Zometa For Bone Strength? What Are The Most Common Side Effects?

A MyMyelomaTeam Member asked a question đź’­
The Villages, FL
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A MyMyelomaTeam Member

I had some cramps and extra fatigue after Zometa. Drinking loads of water helped. I do have some bone loss around some of my teeth. I think it's from aggressive brushing more than Zometa, but I'm not… read more

My Oncologist Is Suggesting I Seek Palliative Care. Have Any Of You Gone To Palliative Care? If So Did You Find It Helpful?

A MyMyelomaTeam Member asked a question đź’­
Richland, WA
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A MyMyelomaTeam Member

Good to know, Hospice & Palliative Care are two different types of services from Hospitals! 🤔❤️
VA may be a little diffrrent?

What’s The Word On Alcohol? I’ve Had 2 Beers In 2 Years And I’m In Tears!

A MyMyelomaTeam Member asked a question đź’­
Moorestown, NJ

I remember my doctor saying no alcohol during induction chemo but haven’t asked him during maintenance. What can you tell me about it? What has your doctor advised? I’m currently on the maintenance regimen of 10mg Revlimid 21/7, dexamethasone and Darzalex monthly.

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A MyMyelomaTeam Member

Pee bottle is great when you are sick, it is cold, you get up multiple times or if you just have limited movement.

Has Anyone Else Felt That Walking Helps Reduce Back Pain?

A MyMyelomaTeam Member asked a question đź’­
Phoenix, AZ

My back has been sore / stiff but I forced myself to go for a walk around the block this morning and I believe it feels better.

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A MyMyelomaTeam Member

Sat. is my general cleaning day; well it used to be. Now it just depends. It's colder here, so outdoor stuff will kind of .....hibernate, soon. I still have to vacuum the inside of the van......today… read more

I Have Witnessed Some Married Couples Separate And Divorce When One Of The Partner Gets Cancer. What Causes This Unfortunate Situation?

A MyMyelomaTeam Member asked a question đź’­
Kenya
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A MyMyelomaTeam Member

I haven’t had any side effects except fatigue. 2-3 days after taking Valcade injections Been taking for last 8 years

Let’s After Stem Cell Transplant

A MyMyelomaTeam Member asked a question đź’­
Ventura, CA

I’ve been told I can’t be around my dog for 100 days after my stem cell transplant. All of you dog lovers how did you do it? I have a 2 year old standard poodle that is connected to my hip!!! I need your suggestions and help!!!!

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A MyMyelomaTeam Member

Funny how most here got slightly different suggestions from our doctors
Bottom line is we have very little to no, immunity after an SCT
I don't see where anyone who responded here took a highly… read more