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I Need Feedback. I Have A Relative Who Says I’m Using My Smoldering MM As An Excuse To Not Do Things Or Garner Sympathy.
This relative says SMM is a benign condition that does not cause symptoms. On top of SMM, I have a heart condition, osteoarthritis, osteoporosis, Cushing’s from a high corticosteroid, so I am losing my eyebrows and some of my hair. Kidney stone too. I used to be so active, that it bothers me to rest too much. I wish I had the energy.
@A MyMyelomaTeam Member,
I found your Melatonin at Costco the other day.💕
Anxiety Vs, Depression, How Do I Know Which One Is Messing Up My Evening?
Sometimes, I'm just too overwhelmed to stay in bed and sleep. By the way, I'm glad you folks are there. 🦉
I started journaling on the trip out here to Alaska; 2012. I write things like the weather on the day, what current events are......News. Also stuff that happen around here that are not all that… read more
Family And Feelings
I love my husband he does the world for me. Now that I have been diagnosed with MM he keeps telling me not to plans things ahead until I see how I feel. I understand but I also don't want to stop living. Also, the part that bothers me is he's concerned about my schedule but not about my back and hip pain that on a scale from 1 to 10 on most days is an 8. Do any of you have a family member that can't understand the pain that maybe associated with MM? Done my vent.
Have your hubby watch the kids and she can stay with you. It’s your time now. Reach out discuss your needs let people make a plan. Don’t say you don’t have anyone. You do and let them decide for… read more
Is Anyone Using The HevyLite Blood Sample Test ? Is Anyone Getting Mass Spectrometry Blood Testing ?
This is a better defined test of the Kappa and Lamda heavy and light chains
This test is available for all Ig types. It more accurate than SPEP and IFE
If so, where are you getting it from and is it covered by insurance
I’ll be looking into that and add to this Post
Mass Spectrometry Testing (MST) is a far more accurate way to test for MM activity but I think it’s only available at limited facilities
If you’re getting MST, where ?
Thank you @A MyMyelomaTeam Member I'll definitely do that!
Hi Everyone, I Want To Members Of Our Group That Had A Kyphoplastic Procedure, Do You Have Limitations To Lift? Do You Bend Your Body? Thank
I have had 3 and there really haven't been any issues or restrictions. I was sore in the beginning but it made a huge difference for me. I would love to have several more done but my bones are too… read more
How Many Of You Know That Viagra & Other Male Enhancement Are Known To Be The Cause Of Multiple Mylomia?
Does anyone know if there is a Class Action lawsuit in the works related to Multiple Mylomia, and OTC Male Enhancement supplements which many have been proven to contain generic Viagra?
https://www.drugs.com/sildenafil.html#warnings
Angie, thank you for this very helpful information. I know estrogen replacement can feed some types of breast cancer. But I have not heard about the link to Myeloma. My MIL would not stop using… read more
Has Anyone Had The Shocking Experience Of Having Someone Blame You For Getting MM?? I Was Told, "Well You Know You Brought On Your MM." WTH!
There are a lot of people who are really hurtful and sometimes I think they are scared and if they say you don’t have it that will make it true
So sorry for all the hurtful comments you and the mm… read more
About Heamotology Doctor Appointment Keep On Changing
I got an appointment with the Heamotology doctor,what l don’t understand is that it keeps on changing the appointment after one date to another, and I so frustrated because l looking forward for this to ask for questions!
Your Heamatology consult has been changed 28-Oct-2024 to 24-oct-2024
Your Heamatology consult has been changed from 16-Dec-2024 to 06-Jan-2025
What is this!!!!!!!!! any one can give the opinion.
Thank you
But I have not contact the Hospital yet(comming soon)
Nova Scotia, we have that same issue as yourself, it's madding?
Whom Amongst You Are Part Of A Support Group?
I am working on developing a new IMF support group and am just looking for input or thoughts on why or why not have you chosen to join a cancer support group.
Mike, is this an ongoing thing starting an IMF support group. I have the same idea. I’m in a support group but I’m not sure at all if the in-person groups are viable anymore. Social media communities… read more
Anxiety
Many of us list anxiety as one of our symptoms. Can you share how anxious you get and how often?
They are heads and tails of the same coin. Unrecognized depression often presents as anxiety. Then of course there is the situational anxiety many of us experience around lab results, treatment, etc… read more
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