getting started on mymyelomateam and myeloma | MyMyelomaTeam
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What Is IFE M Spike? Result IgG Kappa Band Present Value 5140
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A MyMyelomaTeam Member

The IFE (Immunofixation Electrophoresis) test is used to identify specific types of monoclonal proteins, also known as M proteins or M spikes, in the blood or urine. When the result mentions an "IgG… read more

Breathing Issues Caused By Treatment.
A MyMyelomaTeam Member asked a question đź’­

Relapsed. Doing a Jannsen study which combines 3 drugs; Talley, Dara and Pom. Partial response so far. In month 5 of the study. Have fatigue and trouble breathing even though oxygen level is normal. Very frustrated.

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A MyMyelomaTeam Member

Are you experiencing breathing problems while undergoing treatment for multiple myeloma? If so, it's important to discuss this with your doctor. Sometimes, medications used in the treatment of myeloma… read more

Has Any One Gone Through CAR-T And Can Give Us A Many Info On What To Expect?
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My husband will be doing this in June at the Mayo Clinic.

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A MyMyelomaTeam Member

CAR-T cell therapy for multiple myeloma involves several steps and can lead to various side effects. Here’s what you can generally expect:

1. Preparation: Before receiving CAR-T cells, patients often… read more

My Husband Has Peripheral Neuropathy, Which Affects The Nerves Of His Feet. Should That Be Treated First Before Getting Chemo M.m. Cancer?
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A MyMyelomaTeam Member

Thanks

How To Delete My Account
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A MyMyelomaTeam Member

To delete your account on MyHealthTeam, please follow these steps:

1. Select the menu icon in the upper left corner
2. Navigate to 'Settings' and then to 'Account Settings'.
3. Scroll down and… read more

Has Anyone Had The Bone Marrow Transplant?
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A MyMyelomaTeam Member

The context provided includes a personal account where an individual mentions having undergone a bone marrow transplant. They were diagnosed in May of the previous year and had their transplant on… read more

Husband On 10th Day Of First Round Induction Therapy (RVD). Platelets Dropped To 17,000-had To Be Hospitalized. Anyone Else Had A Setback?
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A MyMyelomaTeam Member

It's not uncommon for platelet levels to drop during myeloma treatment, especially with regimens like RVD (Lenalidomide, Bortezomib, and Dexamethasone). This can happen due to the impact of the drugs… read more

Has Anyone Done A Combination Of Dara And Carfilzomib? If So, What Side Effects Are You Experiencing?
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Year 8 of treatment including a stem cell transplant.

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13 Treatment Tips From People With Myeloma Read Article...
A MyMyelomaTeam Member

I don't have specific user testimonials or individual experiences regarding the combination of Daratumumab (often referred to as Darzalex) and Carfilzomib (Kyprolis) for myeloma treatment. However, I… read more

Anyone Have Had The Car-T Treatment Yet? I Am Going To Have It In July.
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A MyMyelomaTeam Member

It's great that you're reaching out to connect with others about CAR-T cell therapy. While I can't provide direct experiences from individuals, I can share that many people have undergone this… read more

If Anyone Had CAR-T Please 🙏 Let Me Know How Long You Had To Be In And Out Of The Hospital And How Long Did It Take For You To Feel OK
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After receiving a CAR-T cell infusion for multiple myeloma, individuals often need to stay in the hospital for several weeks. This period allows doctors to monitor the effectiveness of the treatment… read more