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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "Erythropoietin (EPO)" in Q&A. To see all results and access other features, sign up for free.

May Have To Change Doctors. I Have Had Iron IV And Taking Procrit Vaccine. Actually Based On This Doctor, Beyond What I Posted, Im Disappoin

A MyMyelomaTeam Member asked a question 💭
Boca Raton, FL
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A MyMyelomaTeam Member

I have doctors near me that handle MM

Options If I Don't Want Blood Transfusions!

A MyMyelomaTeam Member asked a question 💭
Philadelphia, PA
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Chemotherapy for Multiple Myeloma: Your Guide Read Article...
A MyMyelomaTeam Member

If you prefer not to have blood transfusions for treating complications of myeloma, there are alternative options available:

- Erythropoietin (EPO) Therapy: Some doctors treat anemia with EPO, a… read more

Has Anyone Used Aranesp? For Anemia.

A MyMyelomaTeam Member asked a question 💭
Cleveland, AL

Husband with mm has had very low Red cells for about 9 months. His new oncologist wants to start the above drug injection. Ive read all about it and there is many many warnings, including DEATH. Anyone have information? Bonnye BSK cleveland Ohio

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A MyMyelomaTeam Member

Death, heart attack, stroke, extreme weight gain….

I Am Off Medication .as It Was Causing Anemia. Have Had Blood Transfusion And Am Getting Injections For Anemia

A MyMyelomaTeam Member asked a question 💭
Ireland, IN

I am off medication. As I was diagnosed with anemia. Have had blood transfusion. I will also get 6 injection 18 weeks.has anyone else had this

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A MyMyelomaTeam Member

It sounds like you're managing anemia related to multiple myeloma. Here are some key points about your current treatments:

Blood Transfusion
- Purpose: Blood transfusions replace blood components in… read more

Anemia After SCT?

A MyMyelomaTeam Member asked a question 💭
Sofia, Bulgaria

My transplant was on April 5th, I was discharged with hemoglobin 100g/L and gradually increasing indicators. After day +33, the hemoglobin started to drop and I had to go in for a blood transfusion. Another 10 days later, the hemoglobin had dropped again and I went in for a transfusion again. This time the platelets were also starting to going down. After three blood transfusions, my hemoglobin values went from 62g/l to only 69g/l. They transfused me with the 4th bank of blood and discharged me… read more

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What Causes Low Red Blood Count

A MyMyelomaTeam Member asked a question 💭
Detroit, MI
A MyMyelomaTeam Member

Have you tried going on theMMRF.org which will give you all the answers you are looking for.
Paula🌹

Anaemia

A MyMyelomaTeam Member asked a question 💭
Sydney, AU

Hi going to see my specialist in 2 weeks I have anaemia feel tired and cold don't want to take any iron supplements before seeing my specialist any though
Thank you

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A MyMyelomaTeam Member

Anemia in the context of multiple myeloma can be quite impactful. Here are some key points:

Symptoms of Anemia in Multiple Myeloma
- Fatigue
- Dizziness
- Weakness
- Shortness of breath
- Pale skin… read more

I Was Diagnoised With MGUS And Anemia In April Of 2023, My Anemia Is Not From Low Iron Or B12. The Cause Is Unknown-64 Yr Old Retired Female

A MyMyelomaTeam Member asked a question 💭
Truman, MN

I see my Primary Care Doctor and a Hematologist/Oncologist. My numbers have stayed the same, but I have had symptoms from the beginning that have bothered me. And in the last 4-5 months my lower back is very painful and some days I have trouble even moving. (I have a history of arthritis in my lower back but it has never felt like this) Also I have shoulder pain that radiates down my arm. I also can't walk more than a block without getting very short of breath. Not sure what to do
Thanks for… read more

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A MyMyelomaTeam Member

Hello Kris4
During the 2-year interval in which I went from Smoldering MM to MM requiring treatment, at one point I suffered excruciating lower back pain. OTC pain meds did nothing to address the… read more

Has Anyone Else Had A Second Stem Cell Transplant 2 Years (or More) After Their First One? If So, Can You Speak To That Experience.

A MyMyelomaTeam Member asked a question 💭
Charleston, SC

My blood counts are "sluggish," and my doctor believes that the stem cell boost is the best way to get them going again. I'm wondering if there are other options. I'm currently using growth factor shots and getting infusions for platelets/hemoglobin, but I'm wondering about other options to increase platelets and Erythropoietin for hemoglobin. Thanks for your responses. I'm in a bit of a panic! :(

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Anyone Have Loss Of Taste And Some Numbness Of Lips. Currently On 3rd Round Of Elotuzumab & Pomalyst. Thx.

A MyMyelomaTeam Member asked a question 💭
Asheboro, NC
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A MyMyelomaTeam Member

I forgot to tell him. I have a phone visit with his pharmacist this week. It is on my list of questions.