Thanks Bevie for responding so quickly. No new medications. And no I haven’t told any of my Doctors about my headaches. I kept thinking it was from low IGA levels which I know can affect my nose, ears, & eyes. Thought sinuses must be doing it. I see my haematologist on 25/10/24. I will mention it to him then. Thank you Bevie for the push.

Did you start a New med about that time? Hope you told your Oncologist about headaches?

I have SMM and I have developed headaches now. I have never had headaches in the past so my feeling is that they are definitely related to the SMM. I have also developed low back pain and hip pain, which I also never had before, so I definitely think you should let your specialist know. I also found out recently that there is a new trial out for those that have high risk smoldering multiple myeloma. I can’t remember what the trial is called, but I bet if you went to look on the international myeloma foundation site you could find it. I will be checking with my doctor to see if that study or trial is right for me and you should check that too, Paula. Does anybody know how you do a DM to a particular person so that the message doesn’t go out to your whole team? I wanted to tell Paula about the trial because it takes place right here in our county. So we would not have a difficult time going to follow the trial parameters. I could not figure out how to do a DM from here. If I’ve learned anything about this sneaky little disease, I would say learn everything you can, but don’t make conclusions until you’ve seen your doctor and discussed it with him or her. I am trying so hard to not be stressed but…….. we are living with a huge puzzle and until all of those pieces are put together in the right spot, you cannot figure out exactly where you are. Some of your numbers being high may be good. Some of your numbers being low may be good or they could both be bad. I believe the experts know how to put the puzzle pieces together and give us their opinion on which way we should go however don’t ever take yourself out of that equation. We know how we feel, we know how we felt in the past and nobody else knows our body like we do.

Fortunately I have not experienced headaches. You might want to have your vision checked. My corrective prescription changed shortly after MM diagnosis and treatment began.

Yes, started head pain about three months ago. Nonstop head squeeze. Tylenol doesn't help.
Definitely treatment and MM related for me.

Please stay hydrated with at least 2 of those 24 ounces cups of water.
Alleviate stressful thinking however you can, and walk daily if possible. These are the minimum things I do daily to help myself push through.

Love.