Connect with others who understand.

Sign up Log in
Resources
About MyMyelomaTeam
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anybody Had Severe Memory Loss While On Pomalyst

A MyMyelomaTeam Member asked a question 💭
Milwaukee, WI

I'm not talking about Chemo Brain, I can deal with that. Since going on Pomalyst I have had 4 episodes (in 7 months) where I wind up away from my home and have no recollection of going there. it lasts an hour or so and gradually goes away. I had PET scans, MRI, CT Scans, neuro exams, and recently a 5-day stay where they did it all again this time with an EEG with the probes on for 4 days. It all showed nothing. I suspected the Pomalyst but The doctors thought no. When I looked the symptoms up 8… read more

February 20 (edited)
View reactions
A MyMyelomaTeam Member

Jimi, I am very forgetful and tired on Pomalyst. I haven't had memory lapses just forgetful. I also have facial and hand swelling. Constipation and ringing in my ears. My ALT was elevated on my last test as well. I keep hoping to get to MRD negativity so I can stop taking it. I'm glad you are doing better and I hope your labs stay stable. 💕🙏

February 20
A MyMyelomaTeam Member

Thanks. I hope everything goes well for you.

February 25

Related content

View All

I Had My Stem Cell Transplant In May 2024 & Recently In Remission. I Want To Know Any Tips To Staying In Remission.

A MyMyelomaTeam Member asked a question 💭
Charlotte, NC

I Have Been Waking Up With Headaches And Through Out The Day Neck Pain Why ?

A MyMyelomaTeam Member asked a question 💭
Fresno, CA

Sometimes My Hands And Feet Turn Red, And They Burn And Itch At The Same Time. It Is Excruciating! Is This Peripheral Neuropathy?

A MyMyelomaTeam Member asked a question 💭
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in