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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Had Hand Pain?

A MyMyelomaTeam Member asked a question 💭
Asheville, NC

I have a question , my stem cell transplant was Oct 2018, in remission . Recently my hands have become painful, I’m still active and working but it’s frustrating and worried it will get worse .My oncologist said I need to stop the Revlimid and think about “quality of life”, with no other alternatives , has anyone else experienced this? Are you familiar with other treatments?

February 9, 2020
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A MyMyelomaTeam Member

I think this is an example of the reason patients are encouraged to get second opinions.

February 10, 2020
A MyMyelomaTeam Member

I do have some pain but it's mainly in my fingers. But I would think they could give you something..not just stop the revlimid and that's it. Do you think it's neuropathy? Good luck sugar..but I am so impressed with you for continue working. I don't work anymore..hope you feel better soon. Hugs

February 10, 2020
A MyMyelomaTeam Member

Hi Peter,
He is a MM specialist down at Emory, hematologist and researcher as well , that’s why I was so shocked he was just throwing in the towel with that minor issue

February 9, 2020
A MyMyelomaTeam Member

Nora....you really need a MM specialist, I think.

February 9, 2020
A MyMyelomaTeam Member

Yes, members of MyMyelomaTeam have shared their experiences with hand pain. One member mentioned, "The most pain is neuropathy in hands (oh my!!!!) and feet." This indicates that neuropathy, a common issue in multiple myeloma, can cause significant pain in the hands.

 This AI-generated response comes from MyMyelomaTeam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.

Multiple Myeloma Leg Pain: What It Feels Like and 6 Tips for Relief | MyMyelomaTeam
Managing Peripheral Neuropathy in Myeloma | MyMyelomaTeam
July 17

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